Information
- The Desmoid Tumour Research Foundation – the US Foundation, who is at the forefront of Desmoid Tumour research.
- https://dtrf.org
Online Support
- Canadian Desmoid Support Group – a Facebook group for Canadians who have Desmoid Tumours or know someone with one.
- The Desmoidian – a Facebook group where Desmoid Tumor patients can share their stories and offer/receive support with fellow Desmoidian’s
- The Desmoid Project- a resource guide for patients to help navigate their journey, founded by patients for patients.