Please Continue to Support Desmoid Research
Behind the Breakthroughs: The Your Stories Podcast
DTRF Co-Founder, Marlene Portnoy, and DTRF Scientific Director Dr. Mrinal Grounder candidly discuss the joint impact of DTRF's patient advocacy and Dr. Grounder's research that led to the breakthrough clinical trial of sorafenib.
First-of-its-Kind Global Consensus Paper Published!
We are pleased to share the publication of the first-of-its-kind global consensus paper on desmoid tumour treatment in the European Journal on Medicine.
Find a Physician
If you’ve been diagnosed with a desmoid tumour, you need experienced physicians helping you through the process.
Help Us Do More
Host your own event, create a fundraising campaign or encourage company donations. We’ve got the resources to help you out.
Granfondo Axel Merckx
This premier North American cycling event will take place on Sunday, July 11th, 2021 in Penticton, B.C.
Desmoids Don’t Stop for COVID-19
While COVID-19 has impacted our daily lives, it does not stop desmoid tumours from growing. The mission of Desmoid Canada remains the same: raise funds for Desmoid Tumour Research. Desmoid Tumours are extremely rare, affecting 2 in 1 million. This year’s event cancellation leaves us uncertain of our ability to support vital research so if you can, please do consider a donation.
THANK YOU for supporting our DESMOID PATIENTS across Canada. If you have any questions, please email us at desmoidcanada@gmail.com.
Take good care everyone and stay healthy!
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What are Desmoid Tumours?
Desmoid tumours are rare soft tissue tumours that affect approximately 2 – 4 people in 1 million every year.
Recent Updates
Recent Posts
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November 29, 2019 PHASE III SORAFENIB DESMOID TUMOR STUDY
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April 20, 2018 CLINICAL TRIALS FOR IMMUNOTHERAPY & HIFU
4th Annual Fundraising Event
Thursday, April 29th, 2021