Together, we will find a cure!
Sign Up for Updates from the Desmoid Tumour Foundation of Canada
Keep up to date with the latest research and be the first to know about our upcoming events.
Apply for a DTRF Grant
Applications are now open for DTRF's General and Early Career Grants, enabling the advancement of desmoid tumour research. If you are an established investigator with and MD, PhD or equivalent degree with an academic rank of assistant professor or higher, you are eligible.
Create your own initiaitive with our *NEW* DFC Fundraising Guide
The DFC Committee has launched the official DFC Fundraising Guide as a tool to help you create your own local fundraiser! Get inspired by past events and explore ideas to help you get started. Best practices will help make your iniative easy and successful! Nothing is too small - every dollar raised counts towards finding a cure for desmoid tumours!
Behind the Breakthroughs: The Your Stories Podcast
DTRF Co-Founder, Marlene Portnoy, and DTRF Scientific Director Dr. Mrinal Grounder candidly discuss the joint impact of DTRF's patient advocacy and Dr. Grounder's research that led to the breakthrough clinical trial of sorafenib.
Find a Physician
If you’ve been diagnosed with a desmoid tumour, you need experienced physicians helping you through the process.
Help Us Do More
Host your own event, create a fundraising campaign or encourage company donations. We’ve got the resources to help you out.
Calling on Canadian Desmoid Patients
Athina’s Ride 2022
We are excited to share that Athina’s Ride – a virtual cycling event (that you can choose to walk, run, swim or just donate to) – is back for it’s second year! Organized by the Merckx family from BC, 100% of the proceeds raised will go to The Desmoid Tumour Foundation of Canada (DFC).
Athina’s Ride has set a fundraising goal of $150,000. Help us get there! You can participate from anywhere in the world. Create your own free fundraising page. Athina’s Ride culminates on July 10th, 2022, however training and fundraising has already begun! Again – no riding is required to participate.
Thank you to the Merckx family for organizing this incredible, global event. We can’t wait to see the impact this will have on Desmoid patients and their families.
Global Consensus Paper on Treatment
We are pleased to share the publication of the first-of-its-kind Global Consensus Paper on desmoid tumour treatment in the European Journal on Medicine.
Funded in part by our American Colleagues at DTRF, the Global Consensus Paper answers critical questions regarding the approach to treatment recommendations, types of treatment and pain management.
Consensus amongst doctors and scientists is groundbreaking, as treatments, medical therapies and information in general varies by country. Many patients worldwide are treated based on the experience of a single physician, which may be limited.
This collaborative paper will help improve standards for treatment and serves as a powerful resource for patients, caregivers and medical professionals worldwide.
Thank You to our Donors!
We want to extend our thanks from the desmoid community across Canada to all those who generously donated to Desmoid Canada last year!
You support during these difficult times will pave way for research we need to find a cure for desmoid tumours.
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What are Desmoid Tumours?
Desmoid tumours are rare soft tissue tumours that affect approximately 2 – 4 people in 1 million every year.
Recent Updates
Recent Posts
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November 29, 2019 PHASE III SORAFENIB DESMOID TUMOR STUDY
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April 20, 2018 CLINICAL TRIALS FOR IMMUNOTHERAPY & HIFU
Athina's Ride
100% of proceeds raised will be donated to the Desmoid Tumour Foundation of Canada