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Together, we will find a cure!

Sign Up for Updates from the Desmoid Tumour Foundation of Canada

Keep up to date with the latest research and be the first to know about our upcoming events. 

Calling on Physicians

Apply for a DTRF Grant

Applications are now open for DTRF's General and Early Career Grants, enabling the advancement of desmoid tumour research. If you are an established investigator with and MD, PhD or equivalent degree with an academic rank of assistant professor or higher, you are eligible.

Get Involved!

Create your own initiaitive with our *NEW* DFC Fundraising Guide

The DFC Committee has launched the official DFC Fundraising Guide as a tool to help you create your own local fundraiser! Get inspired by past events and explore ideas to help you get started. Best practices will help make your iniative easy and successful! Nothing is too small - every dollar raised counts towards finding a cure for desmoid tumours!

Listen and Learn

Behind the Breakthroughs: The Your Stories Podcast

DTRF Co-Founder, Marlene Portnoy, and DTRF Scientific Director Dr. Mrinal Grounder candidly discuss the joint impact of DTRF's patient advocacy and Dr. Grounder's research that led to the breakthrough clinical trial of sorafenib.

Get Help

Find a Physician

If you’ve been diagnosed with a desmoid tumour, you need experienced physicians helping you through the process.

Get Involved

Help Us Do More

Host your own event, create a fundraising campaign or encourage company donations. We’ve got the resources to help you out.

Calling on Canadian Desmoid Patients

Market Research: Understanding Challenges Faced by Patients and Families Impacted by Desmoid Tumours – Through the Eyes of Patients
 
Engage Health (a health research firm) is working with a company who is currently conducting a clinical trial for a potential therapy for desmoid tumors.  They are conducting market research to obtain a better understanding of the challenges faced by patients and families. A $100 honorarium will be paid.  Please visit this link to learn more about eligibility and how to participate. Thank you!

Athina’s Ride 2022

We are excited to share that Athina’s Ride – a virtual cycling event (that you can choose to walk, run, swim or just donate to) – is back for it’s second year! Organized by the Merckx family from BC, 100% of the proceeds raised will go to The Desmoid Tumour Foundation of Canada (DFC). 

Athina’s Ride has set a fundraising goal of $150,000. Help us get there! You can participate from anywhere in the world. Create your own free fundraising page. Athina’s Ride culminates on July 10th, 2022, however training and fundraising has already begun! Again – no riding is required to participate. 

Thank you to the Merckx family for organizing this incredible, global event. We can’t wait to see the impact this will have on Desmoid patients and their families. 

Global Consensus Paper on Treatment

We are pleased to share the publication of the first-of-its-kind Global Consensus Paper on desmoid tumour treatment in the European Journal on Medicine.

Funded in part by our American Colleagues at DTRF, the Global Consensus Paper answers critical questions regarding the approach to treatment recommendations, types of treatment and pain management.

Consensus amongst doctors and scientists is groundbreaking, as treatments, medical therapies and information in general varies by country. Many patients worldwide are treated based on the experience of a single physician, which may be limited. 

This collaborative paper will help improve standards for treatment and serves as a powerful resource for patients, caregivers and medical professionals worldwide.

Thank You to our Donors!

We want to extend our thanks from the desmoid community across Canada to all those who generously donated to Desmoid Canada last year!

You support during these difficult times will pave way for research we need to find a cure for desmoid tumours. 

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What are Desmoid Tumours?

Desmoid tumours are rare soft tissue tumours that affect approximately 2 – 4 people in 1 million every year.

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Athina's Ride

100% of proceeds raised will be donated to the Desmoid Tumour Foundation of Canada

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