our 4th annual holiday fundraiser is live!

Please Continue to Support Desmoid Research

Listen and Learn

Behind the Breakthroughs: The Your Stories Podcast

DTRF Co-Founder, Marlene Portnoy, and DTRF Scientific Director Dr. Mrinal Grounder candidly discuss the joint impact of DTRF's patient advocacy and Dr. Grounder's research that led to the breakthrough clinical trial of sorafenib.

Breaking News!

First-of-its-Kind Global Consensus Paper Published!

We are pleased to share the publication of the first-of-its-kind global consensus paper on desmoid tumour treatment in the European Journal on Medicine.

Get Help

Find a Physician

If you’ve been diagnosed with a desmoid tumour, you need experienced physicians helping you through the process.

Get Involved

Help Us Do More

Host your own event, create a fundraising campaign or encourage company donations. We’ve got the resources to help you out.

Save the Date

Granfondo Axel Merckx

This premier North American cycling event will take place on Sunday, July 11th, 2021 in Penticton, B.C.

The Spirit of Giving

The holiday season brings light into our lives; we know many choose to mark the season as a time to give. Desmoid Canada’s fundraising this year was impeded by the inability to hold in-person initiatives. But, one thing we know is true…

Desmoid Tumours do not stop for COVID-19. So, we cannot stop until we find a cure.

Our 4th Annual Holiday Fundraiser is now live on Canada Helps. Your support is needed and appreciated! Any dollar amount will make a difference! 

With your support, the DFC will be able to finance and accelerate the next phase of meaningful, vital research. 

Donations that were made earlier this year on behalf of our Spring Fundraising Event, sadly cancelled due to the pandemic, have been kept aside. We want to assure those donors that their generosity remains acknowledged and will soon be put into action along with additional funds raised.

THANK YOU for supporting our Desmoid Patients across Canada and worldwide. If you have any questions, please email us at desmoidcanada@gmail.com.

Take good care everyone and Happy Holidays!

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Learn More

What are Desmoid Tumours?

Desmoid tumours are rare soft tissue tumours that affect approximately 2 – 4 people in 1 million every year.

Recent Updates

what's on the horizon?

Stay tuned!

Look out for upcoming communications via email and here on our site regarding 2021 intiatives!

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