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Listen and Learn

Behind the Breakthroughs: The Your Stories Podcast

DTRF Co-Founder, Marlene Portnoy, and DTRF Scientific Director Dr. Mrinal Grounder candidly discuss the joint impact of DTRF's patient advocacy and Dr. Grounder's research that led to the breakthrough clinical trial of sorafenib.

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If you’ve been diagnosed with a desmoid tumour, you need experienced physicians helping you through the process.

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Upcoming Event!

Granfondo Axel Merckx

Stay tuned for upcoming details!

Global Consensus Paper on Treatment

We are pleased to share the publication of the first-of-its-kind Global Consensus Paper on desmoid tumour treatment in the European Journal on Medicine.

Funded in part by our American Colleagues at DTRF, the Global Consensus Paper answers critical questions regarding the approach to treatment recommendations, types of treatment and pain management.

Consensus amongst doctors and scientists is groundbreaking, as treatments, medical therapies and information in general varies by country. Many patients worldwide are treated based on the experience of a single physician, which may be limited. 

This collaborative paper will help improve standards for treatment and serves as a powerful resource for patients, caregivers and medical professionals worldwide.

Thank You to our Donors!

We want to extend our thanks from the desmoid community across Canada to all those who generously donated to Desmoid Canada last year!

You support during these difficult times will pave way for research we need to find a cure for desmoid tumours. Our sights are large, so we will combine these funds with all funds raised in 2021! 

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What are Desmoid Tumours?

Desmoid tumours are rare soft tissue tumours that affect approximately 2 – 4 people in 1 million every year.

Recent Updates

what's on the horizon?

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Look out for upcoming communications via email and here on our site regarding 2021 intiatives!

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